FILEMAN UPDATE
What a week. Having one person in the household who is ill is one thing, but two is hardly do-able.
Jerry had an MRI last Monday to find out if all was a go-ahead for chemo to start on Wednesday. The oncologist called within a couple hours to tell him the MRI showed quite a few “spots” in his brain. That is not what we wanted to hear. So they switched immediately to radiation to hopefully kill the brain tumors. Dr. Brooks said the good thing is the tumors are very small and they caught it very early. He will have 10 radiation sessions every day but weekends; he had 4 last week. He also now has problem swallowing; he was nauseous early in week but some medication has taken that away. His pain is also worse so his PCP prescribed stronger medication to go along with in-between Vicodan. Tomorrow at his session, he is going to ask if there is any way to know how much the lung cancer is spreading. We are both fearful but will not discuss the “what ifs” yet.
As for me, I’m still in a brace – very uncomfortable but I hope helping the fracture heal. I have an appt with my primary care a week from Wed. My discharge papers say I need to make an appt with my neurosurgeon within 2 wks…don’t know why, he opted not to do surgery and then didn’t see me at all after the first 4 days in the hospital. I plan to call the head of the hospital rehab to find out why he put that in my discharge papers. Also discuss it with my PCP. My home health girls have been great. Last week was mainly shower, wash hair and evaluate. This week will probably be more moving around. I hope to get back into Chat when my fatigue and healing improves. I miss you all.
I am so frustrated because of what I cannot do with this fracture and now Jerry can’t do what he normally did due mainly to pain, fatigue and mood. One friend has really stepped up to the plate. I know it is up to us (me) to call if we need help – sometimes that is hard, but I’m going to have to start doing it.
I will keep you posted. Thanks for your comments and prayers; keep them coming, we are just one couple who need them. My prayers go out to everybody having a hard time right now. Hugs, Leah
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