New regime
We got back to Chat this week. Been tough not talking to everyone and not having the latest info. The new names set me back a bit I must admit-don't like change much.
I have become a bit complacent, I must admit. We had a nice routine going and I had some extra "Me" time, which I was enjoying. Bruce was given some new PT, OT due to the insurance change and of course a new round of Botox and our Jen, who took him to the pool twice weekly, relocated. Cathy and Leo have picked up Jen's days, but Leo won't go in the water and Cathy does not drive a five speed. And now, not only do I have to pick up Leo, Cathy's car is down. She walks the mile from the bus stop but I take her home at night. This leaves Bruce alone for about 20 minutes and he always has a phone. They have been so good to us, I really don't mind and Bruce wants all caregivers gone, so this gives him something to think about.
Work is wonderful about all this-any day, any hours. And for that I am so lucky.
OT decerted Bruce after eight sessions. Still nothing on the arm-hand, but we have new Estim locations and while he won't qualify after the Botox in February, will again in May.
Funny, we were awaiting PT on Monday. Bruce says to me "I don't want to be here." I laughed and said, "Honey, you will be decerted soon, just go with it." Lexi walks him out to me and says "Bruce says PT will be ending?" I explained that Medicare would probably decert him soon. She says I intend on keeping him at least until the next round of Botox! LOL. Bruce gets in the truck and says "well, I certainly did not expect that!" I am still laughing.
Leo came early on Monday, did dishes and put everything away, as he does. I did not even think about the am coffee set up for Bruce. I get up Tuesday morning after transferring him at 5:30 am and the kitchen cupboard is open. Bruce started the coffee pot, noticed there were no cups on his side board and went into the kitchen and got two. This requires locking the WC, standing up at the counter, opening the cupboard and taking them down, then sitting back down. This is a first. First reaction was panic, that I was asleep and didn't even know he did it. And now, Good for him!
Continence wise, so much improved and no hassle with the caregivers.
His new routine with PT and the pool is now back on me. I was just getting to love being home and taking care of stuff here. But winter is slow in coming and I have to get him out best I can. Cognitively, he is working on word finding and less repeating. This he has taken on himself. We all still use the same protocols Speech gave us, but now Bruce is using them. Something Speech assured me he would.
Bruce's PT homework this week is to walk with me-not just Leo and Cathy. So far, nothing. But we shall see.
So good weekend to all. Glad Chat is back up and we can all share. Debbie
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