Made it home.... Urghhhhhh!
We we are home and thank goodness, it was a pins and needle type of day.... First Dan just wouldnt move any faster....and then he was mad cause I was moving fast to get ready for the taxi, I had as much done as I could but, there is always last min. Things to check.... We get into the taxi, Dan wasn't very pleasant to the driver.. It was a girl ...he is a sexist back seat driver...got to the airport and I am always asked can he walk through the scanner, he can with a cane so my answer is yes, because that is the honest truth, but he is very confused and gets off balanced with all the tsp instruction and he always sets off the scanner so then the almost cavity search ensues, dig through everything... Which is their job , and I appreciate that.. I do , but it is just a protocol thing if he sets off the scanner by touching the side with his affected arm, that bounces when he gets nervous and confused, then they have to search all,,, at least they let ME reassemble my carefully packed for stroke emergency travel bag, you know the one, the baby wipes, the extra set of clothes and briefs for just in case,, and just in case comes often...then a nice young tsp guy said lady from now on just tell the agents he can't walk through and save everyone especially him , ( referring to Dan) the hassle ... So the truth has not been helping me, I mean if they as can he walk through it with a cane , truthfully yes, logically no... And then not the decent kid , but this is the second time I kinda seen Dan rough handled by them,,, not meaning to but lack of compassion, time and knowledge.. Dan can't just stand up sit down, turn yourself around ... When he sits he plunks no matter how hard he tries to control the speed of the sit , one half of him can't feel much, and then the plunk.... Then the nueropathic twinge.. I have to watch, and if I attempt to intervene I am told stand back... I mean I have already been through security, but the little power trip , and yes it is important the security aspect of it... And not all are bad it only takes the one or two to ruin it... Seems like their is always one or two on shift though.... So we finally clear security and find our gate and sit, now Dan is in full-blown crab mode... He is aching from yesterday and the don't any body help the guy sit down in his chair syndrome... ( they kept asking him questions rapid fire..like ... Who are you, wear are you flying, where were you,,, and Dan can't even say his own name 99 percent of the time,when asked on a good day, but top it off with all the confusion ..right.. That's gonna happen... It is so maddening to watch,,, anyhow we sit down and he is LOST, no idea who , what, where or anything.... I have discovered the I pad allows him to play a very simple game of one person checkers..very , very simple... And so that becomes his focus he crawls in there and blocks the world... Good a little relief, till we board the plan and have to shut it off... Upset again, like I stole his candy.. I kinda did really.... But then he gets it back , and stays busy just playing checkers , which is good, I have found I really do not feel well while flying.... Just very icky feeling... But it beats a 3 day drive....we get home he is happier as soon as he is in our car and it is like 15 above...heatwave... We went and ate with Beth and boyfriend who went to Bismarck for her boyfriends work party.... We had to pick up something's and the boyfriend had a pick up so score !!! Got some more Weston toys his daycare gal still out with their own daughters crisis.. Not good... So I will have him for who knows how long.. So I better get a little more entertainment going on... Then we hit the road Dan and I ... To home... And oops what is one of todays themes ..poopies , Dan got it on the way home and we couldn't stop way to cold , the temps dropped to negative 4 plus a crazy wind so on interstate ND you keep going.... A walk into a public bathroom to embarrassing and cold... Did I tell you it gets cold here in ND? LOL. So we get home and I am beat, but now it is time to clean up poor embarrassed Dan....I am tired, frustrated, perturbed at dans past couple days behavior , but in true caregiver/ wife style suck it up and get him cleaned up and ready for bed... Ohhh all the fun stuff.. We all get to do.... I forgot yesterday Erika ..another daughter got really sick and had went to the ER she needs to have a GI consult and scope done, she has stomach ache after stomach ache... And her gall bladder is gone...life is just a awful lot... And I know we all deal with similar issues I am just in a mode as of late to blog them.... It seems to keep me centered and I do know we are moving forward a little just at a snails pace ... With lots of set backs.... That shower fall yesterday didn't help matters much , and attributed to today's goings on, he was so still and sore.... Well I just hope he SLEEPS !!!!!!
Nancyl
10 Comments
Recommended Comments