new - sorta interesting stuff...
well as i blogged in the past , dans carotid artery is open now... i really lean towards this being a new development-- with the super high INR... anyhow... we have seen 2 seizures since then , one grand map ( probably his body responding to the onset of the UTI)-- of course hind site.. and again last night, last nights i described to you all -- hind site it was a seizure.. way different than any i have ever seen before... today we got him washed up really good i was gonna showere him but the PT was more important than zapping his energy on a shower... and i can give a pretty good bed bath.. so i got him cleaned up and hair shampooed... yes the water got everywhere but it was all bedding that was gonna be stripped and i had set up to wick it from getting to be a real problem... my daughter erika and a nursing student helped.... anyhow..... here is the good stuff... dans PT said dan has practically zero tone in his affected leg ( and there is much less in his affected hand as well) ... now he was highly toned but he had learned to use the tone to walk ... now he cant walk as his tone is gone... he can stand, and side step but cant even walk one step forward with his affected leg..this sounds awful... BUT there is a BUT---- this might not be a bad deal, we know something has happened in his brain and the loss of tone might be why the seizure was so much less, and the fact he cant walk... he will need to relearn to walk.. with out tone ( unless it comes back and it might, but NO ONE KNOWS) ... oddly dan seems pretty clear of mind when he focusing on taks... and seems to be having an extention of sentences.. like a two part sentence.. example: oh brother , get out of here.. those are two thoughts and not a( "catch phrase to fill in the gap) so i am gonna have speech lady see him to.. the PT said he has never seen some one lose their tone, with out some sort of "brain issue not being involved example.. new stroke or seizure activity or perhaps new blood supply to brain that wasent getting much ??? so we dont know !! good or bad we dont know... of course the other part is dan could be so weak from the sepsis that the tone is gone temporarily from that... but tests the PT did were different results than before our last couple weeks of drama.. his therapist said before he had to use full body weight just to do a toe to shin stretch ... today he could do it with one smooth motion....so we dont know.. but i promised to blog it, for you for me and for pure survival... and i might be crazy -- ( i dont think i am) .... but i feel this stuff is different , i dont know .. maybe not maybe i am looking for something that isent there ( the elusive unicorn) .... but hey its a thought...and i am not crying today, i might tomorrow but not right now.... but i always blog to soon...we will see..
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