day52 09.23.2014 PT ends this week
Hello all,
11:03am on a beautiful tuesday morning out here, 27°C...sunny...and still sunny on 23rd September.
Still have not been to the hospital and mom told me that she had enough of this hospital PT which was 20min to 60 mins per day and she said she could hire a PT and train grandma at home, and it'd be much better she said...I guess noone is in control of the situation in the hospital and noone was able to forecast or plan anything for my grandma and she believes this PT thing was just for grandma to stand up...stay up in bed, etc...not for speech nor for feeding...the PT doctors are not commenting on the method to feed her, basically noone wants to take a risk and then it comes down to a circus as mom says. During my grandma's PT, there's not a single electronic device which was used to activate my grandma's right arm-leg synapses, etc...I was dreaming of an enhanced PT session where grandma was made to stand up, her feet would be installed with wireless cables which would apply somekind of little electrical impulses to make her use her nerves, etc...well, I have not seen the PT being done to her with my own eyes, but it was just therapists holding her from her armpits, and ...you know "try to take a step now, etc..." kind of thing. Mom says she has had enough...and she said she'd hire a PT for grandma to apply the same procedure for an hour or 2 hours at home...dunno what she's up to but she's taken the lead. She asked the professors and docs there about my grandma's swallowing and speech improvement and they have not said anything about this...all it was said was "she'd be better in the next 4 months"...well then my mom said, and she'd taken the lead now...Grandma will be fed with yogurt and juice puree at home as it was before the hospital...
Grandma's 2nd sunshine visit was yesterday via the wheelchair again and mom said she did not want to go out...but mom insisted and finally they were out in the sunshine for 15-20mins...gradndma was trying to avoid eye contact with the people in the hospital garden...I believe the reason is because she'd not want to be seen by others in a situation like this, and with a 10inch long pipe hanging loose from her nose, the NG pipe, her feed pipe.
Mom said they had many funny moments, moments where both laughed in an insane manner when she was changing her mother's diaper...grandma was trying to explain her smthg but then my mom did not understand...then mom said she thought about her mother's diaper, she wanted to check if she'd filled in her diaper, then she pulled the curtain which seperates the room for the 3 beds in the room...anyway, mom turned grandma over, to check her diaper, then grandma kind of tried to extract her intestines out, got red in her face, then mom realised that what grandma was trying to say that she was constipated...hahaha...they started laughing together like mad...mom had grandma oiled a little and she was relieved...
Looks like grandma is coming out of the hospital on this friday, back home...home sweet home...
By the way, I just ordered the thick-it, thanks to Sandy and everyone who has mentioned this thick-it product =)), I ordered the 26.95usd worth 30oz (nearly 1kg) plastic jar. It should arrive within 2 weeks time, the shipping cost was dearly, but that's fine, 60usd. We'll see if grandma can improve her swallowing with thick-it...we must get rid of this NG pipe in her nose first...in parallel she has to learn to stand up, which she can do for 5-10mins with a little help and take 1-2 steps back and forward.
There's a really huge park just outside her house, the fair (Fuar in turkish), and just like she took me to my wonderous and beautiful walk sessions when I was just 3-4yrs old, I can now take her out there, and she can see beautiful trees and flowers...she can meet nature and hopefully would feel more alive and enjoy her time then...we'll see...
healthy and happy days to all of you out there,
cheers,
Cagin
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