I understand...

Bless you my friend for your passion, courage, and your ability to post this...

 Your  friend

Dean

  Good evening Dean, thanks for understanding.  You mentioned another common problem that we share and that is our slowness of speech.  At least we are slow when compared with other that we are around.  I may have a million words in my mind to say but getting them out, past my tongue, is very hard indead.  I'm frustrated by the fact that I can get 2 or 3 words out and other ppl (especially family) squach or talk for us because they think they know what we want to say.  So I just stay quite and thats most of the time.

Thank you again, take care.  Ed

Ray had massive fatigue issues even after the first mild stroke in 1990. He worked from six months after his first stroke.  He came home from work, walked into the house, sat in the chair and was out like a light.  I woke him for the evening meal and then he'd look at his watch and off to bed.  He slept most of Saturday and Sunday afternoons and then off we went for the next week.

After the second and third (four weeks apart in 1999) he no longer worked so sleeping was not as big an issue, he slept at least 12 hours each day unless we had doctor's appointments or had to be somewhere, I asked the neurologist why and he said it is like you are carrying half your body weight with just half your body strength, which made sense to me.

Good morning Sue, how is it there downunder?  I'm looking out my two front windows on a crisp bright morning here.

  I can feel for Ray, I sleep almost that long but in several shifts; 8 hrs a night and then 1 or 2 hrs several times during the day.  And thats a good analigy that your neurologist told you about, it makes sinse.  And you know, it's funny but this only came on me in the last cpl of years, say like since I turned 50.  I had plenty of get-up and go before that...ahh, it's strange how our bodies work. 

  My best regards, your friend in CA, Ed

Ed,

I understand all of what you said and I'm the same way after just ten years as a survivor of one stroke. I even worked as a greeter at Walmart for three years using my scooter at the door.

Being tired is just part of the whole experience of a stroke survivor in my opinion!!

Welcome Back Fred.  Thats all I've had too is 1 major Stroke although I think I've had 3 TIA's since.   You'd think that some of the things would get back to normal by now!  lol  I was so young when I had mine that my energy came back almost right away but it's now that I have to think before I DO anything, wondering if I've got the energy to do it.

Hope your knee is improving.

Great post title, Ed!!!

My goodness, this seems to be quite a prevalent problem among stroke survivors.. I've blogged about it numerous times myself, most recently today:  I'll be having my sleep study next week but since learning about the scar-tissue in my brain as being a possible cause, I'm remaining a little hopeful  that the study will provide ideas to treat.

...all I want for Christmas... is sleep,

:-)

Rose