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Another day in this wheelchair


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Oh how I wish I could walk or even stand enough to go further affield. After 6 months I'm so sick of the part of the house I can reach. Before the stroke I avoided housework, now I'm a nuisance doing all I can from my wheelchair. Keep hearing of people who walked so much sooner but remind myself all strokes are different before I get too depressed. Yuck, turned over tv coverage of the 1 mile run for thousands, upsetting seeing what I haven't yet. Tell myself off for self-pity, I'm lucky to be here.

Day started as all do, indignity of carers washing and helping to dress me. After breakfast follow the usual exercises, those I do 4 times each day, both for my speech and limb movement. I have set times so I do the half hour sessions, forces me to do them.

Should be a good day though. Out for lunch at Mum's, tinged with sadness too, 2 years to the day that Dad died. I found out I was ill a month after Dad died because I grew short of breath helping her nurse him, eventually sought doctor. Dad, cancer, stroke, as a soap storyline would be criticised as unrealistic! Visits out limited at moment as I need to come home for hoist to toilet! Be easier if I had a catheter but don't need one and when I did hated it. Car has a hoist fitted to get me in the passenger seat. Rather handy, I get out 2 or 3 times a week. more than I did when well! Beautiful day to out, warm and not a cloud in sight. Taking the boys, hope they don't disgrace us. They're 11 13 15, its youngest has doubtful manners as children do. Fairly good set of boys though in all. Youngest recently came 7th in tests at school for year of over 200, we were so proud.

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Well, in 1985 at age 39 :Tantrum: I had a stroke - I was newly maried with 4 kids, and at this time I was training to run in our town Marathon, but as fate would have it, I, too stroked and never ran, but having to take a back seat, I learned to appreciate my family more, and worked harder to recooperate - I am not superwoman, by any means, but I chose not to have a pity party, and believe that's what saved me. So my advise to you, if you want it, is to expend your energy on walking instead of feeling sorry for yourself - I was old that I was handed a lemon, so just make lemonade, and its hard, but it works

GOOD LUCK, GOD BLESS

June :big_grin:

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I was in a chair from the beginning of my stroke thru 6 months after discharge. Hospital with rehab was nearly 4 months. I was told early on I would be wheelchair bound. That all changed when I learned to climb stairs and walk unassisted with a quad cane. I started with what's called a hemiwalker.

 

I got single point canes, I prefer the quad, I don't have to keep picking it up, it doesn't fall when I lean it against the wall or my body.

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Oh I WILL get there, that's why all the exercise. Voice is coming along great, single words per breath but hey I manage mostly not to use the alphabet board I did use to rely on. I spent around 11 months in hospital/rehab but rehab gave up on me (note they did, I never did) so the 4 months or so spent there were really wasted time. Can't change it, just look on it as at this point I'm really a year from the stroke, as no meaningful physio had all those months in rehab. Now have a very positive physio who recently said I will be on my feet again one day.

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