I just got beat up, jumped on, kicked and left for dead.
I just got beat up, jumped on, kicked and left for dead. At least that is what it feels like. A well meaning friend called this morning because she had heard my husband was in the ER yesterday. Though I have known her a very short time, I have appreciated some of the support she has shown. In fact last week she ran to the store for me when my husband was too sick for me to leave him. However, this morning she was like a steam roller. She told me what to do as far as doctors and when I tried to explain that that does not work she would continue on telling me what to do and that I was doing everything wrong.
I learned very early in the game that the medical community often shows a lack of understanding of stroke. Within a week of the stroke I had taken over learning about stroke and what did and did not work. I listened to a lot of bad information coming from the mouths of doctors. This is even more pronounced with vascular dementia. The only reason that he has been diagnosed with this condition is because experienced people on this board recognized the symptoms and the doctors agreed when it was presented to them. I know that there are specialists dealing with geriatrics and stokes but I have not found them.
My husband has been deteriorating mentally and physically since the end of February. The speed of deterioration seems to be escalating. I took him to the VA yesterday where they sent him through ER instead of to his primary care physician. They would only focus on one of his symptoms which is extreme diarrhea. I guess I can understand this in a twisted way because they probably understand diarrhea better than stroke or vascular dementia. They could not find the cause for even this though.
I can ask questions and make suggestions until I am blue in the face but if they do not understand the primary condition there is a limit to what help I will get from these medical professionals.
So, to have done my best and get called down on it and told I am doing everything wrong, while my poor husband is groaning and moaning in the background just caught me off guard. I feel like a trembling wad of tears. I am angry and hurt. I don
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