Well you should be very proud to live to see another generation you started come along. I know I am as I'm a great grand parent already for two years now.

Congratulations to her and you Too Granny!

Karen,

No matter what family says, please try not to let it get you down. Those on the outside have no clue what it's like. My family, at times, will remark on how so and so had a stroke and recovered rather quickly. It is difficult not to get upset but getting upset only brings us down more.

I too, at times, become over-stimulated whe iin large crowds. I usually go off and spend "Donna time" to regroup

You are a miracle to be here, hold your head up proud and :nana: to them

Karen,

 

No matter what family says, please try not to let it get you down. Those on the outside have no clue what it's like. My family, at times, will remark on how so and so had a stroke and recovered rather quickly. It is difficult not to get upset but getting upset only brings us down more.

 

I too, at times, become over-stimulated whe iin large crowds. I usually go off and spend "Donna time" to regroup

 

You are a miracle to be here, hold your head up proud and :nana: to them

[/quote

 

It is times like that all the miracle dust falls off and you feel nothing but hurt and discouragement . I am not without comprehension. I did not as many lectures when I was a child. You are exactly right I need some healing time. I feel like no matter how hard I work its not good enough. I will never be the old me again ....... and unless and until..... I will have to pick and choose the times I am willing to be stuck in a corner and scolded like a child. After all I am the great grandmother

Karen:

please don't read too much into your family's actions when you are in foul mood. I have been guilty of telling my mom to not to make scene of crying infront of others & she is not stroke patient. but others don't know why you are crying & will think worst thing about your family & you want to avoid that. I hope you understand your daughter's point of view. BTW no two strokes are alike lot don't make it & some stay in wheelchair for rest of their life. But we have survived & we have to make lemons out of our lemonade. I feel acceptance is daily thing. you have to work hard towards accepting new you.

tomorrow is another day & this shall pass too.

Asha

Karen:

 

please don't read too much into your family's actions when you are in foul mood. I have been guilty of telling my mom to not to make scene of crying infront of others & she is not stroke patient. but others don't know why you are crying & will think worst thing about your family & you want to avoid that. I hope you understand your daughter's point of view. BTW no two strokes are alike lot don't make it & some stay in wheelchair for rest of their life. But we have survived & we have to make lemons out of our lemonade. I feel acceptance is daily thing. you have to work hard towards accepting new you.

 

tomorrow is another day & this shall pass too.

 

Asha

I was not in a foul mood at all However a hundred people can be overstimulating. I required help and that is when sne scolded me. They think I snould be fine when I am obviously impared. Althoug at first glance strangers would not necessarily know why. It really is okay I am used to it I guess My family knows I am disabled but the chose to think Its a choice to remain so I should be fine now. oh I am in a scootie unless it is only the snortest of distance I manage with a cane. Karen

Karen,

Crying is not a bad thing. When I was stroked I cried for no reason at all, just bust out crying. I ask Holy Spirit why am I doing this and the answer: this is you laughing turned inside out and is healing you. When I went to my Neurologist his answer was I was depressed and needed pills. I chose to believe the Holy Spirits answer. Change your mind every time you start to cry and put the thought of laughter, for laughter is healing. :congrats: for being around to see another Generation.

Karen, I act as a buffer between Ray and the world. Like you Ray cannot go into a large group of people, he too finds it too much stimulus, so I steer him into a corner where it is not too noisy and run back and forth with food etc. I tell people what his requirements are, like time out and quiet time and a place where the music is not blaring away, most people I talk to do try to understand. I guess because of the length of time I have been caring for Ray, ten years now, I know him so well.

Congratulations on getting out and about the way you do. I know there will always be those tales of someone else who had a stroke and got over it, but I also know that for people like you and my Ray life is not like that, it is going to continue to be very challenging and people, particularly those in our families, need to take that into consideration and try to make visits more comfortable.

Sue.