ksmith

Executive Management
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    ksmith

    Posted

    On 5/23/2017 at 3:03 AM, HostSue said:

    I used to be able to edit blogs as Blog Moderator, which often meant changing the font but I do not have the authorisation to do that now.  Was this blog written elsewhere and copied Kelli, or did you select this font? If it did this come from somewhere else you should be able to edit it yourself.  Sorry I can't do it for you :(.

    yes and I reprinted it in regular Romans  :) Sorry 

    ksmith

    Posted

    On 5/22/2017 at 4:51 PM, ufusco said:

    Would love to read what you wrote but your font is coming up as a script font so its very hard to read. :(

    " taken from story "The Spoon theory" I asked her to count her spoons. She asked why, and I explained that when you are healthy you expect to have a never-ending supply of “spoons”. But when you have to now plan your day, you need to know exactly how many “spoons” you are starting with. It doesn’t guarantee that you might not lose some along the way, but at least it helps to know where you are starting. She counted out 12 spoons. She laughed and said she wanted more. I said no, and I knew right away that this little game would work, when she looked disappointed, and we hadn’t even started yet. I’ve wanted more “spoons” for years and haven’t found a way yet to get more, why should she? I also told her to always be conscious of how many she had, and not to drop them because she can never forget she has Lupus. I asked her to list off the tasks of her day, including the most simple. As, she rattled off daily chores, or just fun things to do; I explained how each one would cost her a spoon. When she jumped right into getting ready for work as her first task of the morning, I cut her off and took away a spoon. I practically jumped down her throat. I said ” No! You don’t just get up. You have to crack open your eyes, and then realize you are late. You didn’t sleep well the night before. You have to crawl out of bed, and then you have to make your self something to eat before you can do anything else, because if you don’t, you can’t take your medicine, and if you don’t take your medicine you might as well give up all your spoons for today and tomorrow too.” I quickly took away a spoon and she realized she hasn’t even gotten dressed yet. Showering cost her spoon, just for washing her hair and shaving her legs. Reaching high and low that early in the morning could actually cost more than one spoon, but I figured I would give her a break; I didn’t want to scare her right away. Getting dressed was worth another spoon. I stopped her and broke down every task to show her how every little detail needs to be thought about. You cannot simply just throw clothes on when you are sick. I explained that I have to see what clothes I can physically put on, if my hands hurt that day buttons are out of the question. If I have bruises that day, I need to wear long sleeves, and if I have a fever I need a sweater to stay warm and so on. If my hair is falling out I need to spend more time to look presentable, and then you need to factor in another 5 minutes for feeling badly that it took you 2 hours to do all this.” 
     

    SassyBetsy

    Posted

     That was so eloquently written.  Over the time you have been at this site,having the privilege of watching you go through all of which you have, both good and bad, has been a teaching guide for me in recovery and understanding . I am so glad that you have finally found the cause of the pain and itching and NO I never thought you were crazy. As stroke survivors, we are blessed , or cursed, to understand what the brain can do.  I  have ALWAYS loved the fact that you spoke your mind. And this paragraph; " I am not a wild dog in rage but there is a river of anger that drives purposeful motivation. I can control my emotions because I expressed and dealt with and became master Queen of the deepest most powerful of them. Yet I allow myself vulnerability to cry weep over disappointing stagnations in recovery and lack of power in my life. Therefore I refuse to be bullied and engage in small power plays because those are the deadlies" is absolutely magnificent in explaining what stroke can do to a person  

    ksmith

    Posted

    6 hours ago, tmciriani said:

    Kelli I am so excited with you! This could be life changing...how wonderful is that?

    I had a dream last night and my eye surgery happened and though I still had drunk feeling in my head i was able to see correctly. Then, as always, life plays it's prank on you and when I woke up I was feeling fantastic and realized I hadn't had anything and was so sad ;) 

    But thank you bunches

    ksmith

    Posted

    I literally started to cry reading that. That is so many of my emotions put into words and I haven't figured out to say it them all.

     I,to, feel like I was to busy to see the smaller things like my children. Growing up and I was busy.My youngest son has an incredible bond with his father and I feel like I drew them together for I was always working.

     

    Two jobs. Guilty