Maxine

Stroke Survivor - female
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Blog Entries posted by Maxine

  1. Maxine
    i WAS JUST WONDERING IF ANY ONE IS USING THEIR WHEELCHAIR AS THEIR HAND NOW ...IF SO CAN YOU TELL ME HOW...I USE MINE TO CARRY THINGS INTO OTHER ROOMS LIKE LAUNDRY,CLEANING SUPPLIES, COOKING ETC...I OPEN ALLOT OF STUFF BY PUTTING IT BETWEEN MY KNEES THEN OPENING WITH MY GOOD HAND,DUSTING N CLEANING ETC...I CANT BEND DOWN N GET BACK UP SO USING THE CHAIR PUTS ME AT A DISTANCE SO I CAN REACH UNDER CABINETS - GET TO LOWER SHELVES IN FRIDGE ETC...BASICALLY ANYTHING I NEED TO REACH FOR OR CARRY TO ANOTHER ROOM ...IVE TRIED THE BAG AROUND THE SHOULDER N THIS ADDS PAIN IN MY GOOD SHOULDER N MOST OF THE TIME HAVE MY BAD ARM HOUSTED UP IN A SLING(FOR ARM SUBLUXATION) SO THAT PUTS PRESSURE ON BOTH MY SHOULDERS IF I USE A BAG LIKE THAT...IVE TRIED DIFFFERENT THINGS BUT FIND MY WHEELCHAIR IS THE EASIEST WAY OF ACCOIMPLISHING MY TASKS...I USE A CANE WHEN I WALK SO THAT KEEPS ME FOM CARRYING ANYTHING AT ALL WITH IT....IS THERE ANYONE THAT USES THEIR CHAIR FOR THIS N CAN U TELL ME HOW AND WHAT YOU USE YOURS FOR? THANKS
  2. Maxine
    OK - I NEED TO KNOW - BUT ALREADY THINK I KNOW THE ANSWER - IS THIS ALL I GET BACK FROM ME? - MY CVA HAS BEEN ABOUT 1.5 YEARS AGO. IT TOOK OUT MY LEFT SIDE - MY LEFT ARM AND HAND ARE STILL NOT WORKING - I CAN HOBBLE AROUND WITH A CANE BUT WANT SOMEONE WITH ME - I STILL DON'T FEEL THAT STABLE TO VENTURE OUT ON MY OWN - I DON'T HAVE MY DRIVERS LICENSE AND WANT THEM BACK BUT AM AFRAID TO TRY WITH ONE SIDE ONLY - MY SUBLEXED SHOULDER IS HURTING NOW
    WHERE IT HAS SEPERATED AT MY SHOULDER & UP MY NECK- I AM SCHEDULED TO HAVE ENDOSCOPIC CARPAL TUNNEL ON THE ONLY GOOD HAND I HAVE - I USE MY WHEELCHAIR AT HOME CAUSE I USE IT AS MY LEFT HAND TO HELP ME CARRY THINGS AROUND THE HOUSE AND OPEN ANY TYPE OF FOOD ITEMS WITH MY KNEES - I HAVE LEARNED TO IMPROVISE ON MANY THINGS - BUT I MISS BEING ME - WHERE DID I GO - I KNOW IM NOT COMING BACK I THOUGHT I WOULD LEARN TO GET USE TO THIS - BUT I JUST KID MYSELF - I'VE WORKED SO HARD TO GET WHERE IM AT - BUT FEAR IV'E HAVE PLATAUED AND THERE IS NO FURTHER PROGRESS TO BE MADE - I'VE WORKED SO HARD THE LAST 1.5 YEARS AND NOW I FEEL LIKE - WHY BOTHER - MY LIFE CONSISTS OF NON STOP DOCTORS,HOSPITALS & THERAPIES...IS THIS ALL I GET THE REST OF MY LIFE - NOT MUCH TO LOOK FORWARD TO - AND I DON'T WANT TO HEAR ANYONE SAY ONE MORE TIME TO STAY POSITIVE & LOOK AT HOW FAR YOU'VE COME - OMG CRAWL INSIDE ME AND FEEL MY PAIN - PHYSICALLY & MENTALLY - SORRY IM SO NEGATIVE - BUT ITS JUST HOW IM FEELING AT TH MOMENT - BELIVE IT OR NOT - I ACTUALLY DO HAVE GOOD DAYS
  3. Maxine
    THIS IS THE FIRST TIME I'VE EVER DONE A BLOG - HOPE IM DOING IT RIGHT...HERE GOES....DOES ANYONE FEEL LIKE ME,,,I AM JUST INTO THIS A LITTLE OVER A YEAR NOW AND I AM STILL CRYING OVER JUST ABOUT ANYTHING...I AM ON ZOLOFT AND LAMACTIL FOR THIS BUT EVEN THAT DON' HELP AT TIMES AND TAKE ATIVAN ON REALLY BAD DAYS...IM ALLSO SEEING A THERAPIST....HERE 'S MY ISSUE...I CRY MAINLY AROUND MY KIDS AND I HATE THIS BECAUSE I BELIEVE THEY DON'T WANT TO COME AROUND ME ANYMORE...WELL MY OLDEST SON ANYWAY...MY YOUNGER ONE STILL COMES AROUND...HERE IS WHAT I'M FINDING...I THINK MY DAUGHTER IN LAW IS TRYING THE TOUGH LOVE THING WITH ME...I SOOOO DON'T NEED THAT RIGHT NOW....IN THE BEGINNING OF THIS STROKE EVRYONE WANTED TO HELP AND OFFER ANYTHING THEY COULD DO FOR ME...NOW IT'S LIKE A DEATH...YOU KNOW WHEN AFTER SOMEONE DIES YOU GET ALL SORTS OF OFFERS FOR HELP ETC. AND THEN WHEN THEY GET ON WITH LIVING YOU ARE FORGOTTEN WHEN DOWN THE ROAD IT'S THEN THAT YOU NEED THEM...THE TOUGH LOVE ISSUE I AM TALKING ABOUT WITH MY DAUGHTER IN LAW ARE A FEW THINGS LIKE EXCLUDING ME FROM CONVERSATIONS...TURNING HER BACK ON ME IF I START THE CRYING THING...SHE USE TO HELP WITH MY HOUSEWORK AND DON'T DO THAT ANYMORE...WHICH I PAID HER FOR AND NOW WONT GIVE ME A DIRECT ANSWER TO IF SHE WILL STILL DO IT...SO I DONT ASK ANYMORE...SATURDAY THEY BOUGHT A NEW 4 WHEELER AND STOPPED BY...MY YOUNGEST SON AND HIS NEW WIFE STOPPED BY ALSO...EVERYONE WAS TAKING TURNS ON IT AND I WAS SITTING ON THE TAILGATE OF A PICKUP TRUCK...AND HERE COME THOSE TEARS THINKING ABOUT ...ILL NEVER DO THAT AGAIN...AND THE GIRLS SAT UNDER A SHADE TREE AND ILL PROBABLY NEVER DO THAT AGAIN CAUSE I CANT GET UP OR DOWN OFF THE GROUND...ALL THE SIMPLE LITTLE THINGS THAT HAVE CHANGED...ALSO I THINK MY DAUGHTER IN LAW DOESNT BELIEVE I HAVE TO WEAR THIS LEG BRACE FOR MY ANKLE..CAUSE SHE KEEPS ASKING WHY I CANT PUT SANDALS,DRESS SHOES ETC. WHEN IVE TOLD HER I HAVE TO WEAR THE BRACE BECAUSE MY FOOT ROLLS TO THE SIDE AND I CAN;T WALK WITHOUT IT.... I WEAR TENNIS SHOES CAUSE ITS THE ONLY THING MY BRACE WILL FIT INTO...NO MORE OFFERS FOR HELP NOR DO THEY ASK ABOUT MY DR APPTS OR PT...I GOT REMARRIED 9 SHORT MONTHS BEFORE THIS HAPPENED AND THINK THEY MAY BE THINKING ...SCREW IT LET HIM TAKE CARE OF HER....I MISS MY KIDS AND HOW THEY USE TO CARE ABOUT ME..IT JUST MAKES ME SO SAD.
  4. Maxine
    can anyone help give me any suggestions on what to do wiyh the only good hand i have is stating to become so painful that i do not know what im going tio do - occupational therapy has been working on it for a month with not much reaults...i was told to completely rest it....can anyone tell me how to do this when its the only hand to do virtually everything from rolling in my wheelchair to using it fortaking a bath and using the restroom....and can anyone tell me what they have done other than surgery to stop the pain?....has anyone tried cortisone shots...if so did it work? and for how long?....i know its not a cure but ive heard some people say they've had cortisone that lasted for years(not stroke victims).....please anyone with any suggestions other than surgery?