heathber

Stroke Survivor - female
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Blog Comments posted by heathber

  1. I think x axis must be date. and 2 points per day/morning diastolic and systolic pressure.  It will be interesting to see how it clusters over more time. Maybe also record a "headiness" score for each day and see if there's any correlation, give yourself a rating from 1 to 5 as there's no objective data to track.

  2. Good plan Kev! That so slow progress can be hard to come to grips with.

    Goals are good but don't beat yourself up if/when you miss a day.  The aim is to create a habit which takes time so maybe start with micro habits at first that will lead up to your big goals. Its the new big thing I heard someone discussing this on the morning radio the other day

     

  3. Oh Pam hugs, you can do this! My Aunt once fell and broke her back on Christmas day. Once she was stable we all gave he heaps for upstaging everyone at Christmas, and having to be the center of attention. She was in hospital after that one for a couple of months.  But you have to laugh at these things!

     

    I'm so glad you were with your son when this happened and he was able to take you to the emergency room so quickly. Fingers crossed you recover quickly and life can return to "normal"

  4. George that is great. And music is all about logic and math don't sell yourself short. Do some reading on harmonics and scales and chord construction, then train your ear to guide you, if you had no exposure to playing music as a child your brain may not go there at first.  But if you have some rhythm sense and a head for maths music should come relatively easily.  I found scales and chords made much more sense once I understood the math behind it. I'm still looking for an instrument that doesn't need a left hand and is relatively portable. A friend suggested harmonica, but it just doesn't appeal to me. There'll be something but I haven't found it yet.  I'll have to investigate properly once I retire, but there's no rush right now.

    Enjoy your Dulcimer!

    Heather

  5. Thanks Will, the area with the fires has also been in severe drought for several years which is part of why the fires are so bad and starting this early in the season. Thankfully I'm much further south and Janelle is much further west. Sue would be the closest of the regular Aussie Strokeneters that I know of.  Fingers crossed that everyone gets through today OK, the forecast is for a "catastophic" day in that area today. They don't use that fire danger rating very often, thank goodness.

  6. that's great George, we do something similar for splitting wood with the hydrolic splitter.  The controls are deliberately designed to need 2 hands as a safety measure. so that you have to take your hands away from the log to be split before activating it. My sister and I work it as a team. she holds the left control and I (or both or us for the really big ones) load/unload the logs and operate the right control. It works quite well once you get a rhythm going.

  7. Oh yes the shower! thanks for the memory jog. I had a few "fights" with my OT over that one in the early days. I hate showering in the chair you just don't feel clean all over (which I know is not truth). One of my first goals in rehab hospital was to shower "properly" and wash my own hair. I hated the nurses doing it.  But hospitals are so risk averse they wouldn't let me do it. I had to wait until I went home. I had the stool/chair in the shower so it was there if needed but I would stand as much as possible.  I got better at very quickly, I only remember one bad fall where I tripped getting out of the shower. My sister then made me go to the doctor in case I'd given myself a concussion, but I was lucky.

  8. I'm afraid he is correct Asha, the gold/diamonds are there but sometimes you have to keep sorting through muck to find them, it's worth the effort in the long run.

    And oh yes the annoyance of using a cane/crutch when only one hand can be relied on. worst when it's raining and you just want to use an umbrella not struggle into a coat.  Fingers crossed (whenever I can spare them) that the ankle heals quickly.

  9. The limit is reached when we stop trying. So long as you are trying new things anything is possible.  That "going on strike" effect of finding something new is quite common I think.  My theory goes something like this. Even "simple" things are complex e.g. hopping requires that certain muscles turn on in exactly the right way and in the right sequence with perfect timing for others to turn off so those ones can turn on and as it's an explosive movement they have to turn on together and that's not even thinking about the shock absorbing and landing that has to happen afterwards.  The first time you do something with that complex a sequence is partially dumb luck, repeating it requires all those things to work together again and the post stroke brain (well mine anyway) is not so good at sequencing and fast reactions so it takes repetition to setup the pathway/sequence so you can keep doing it and finding that perfect sequence a second time seems to be tricky.  and by the next day the brain has forgotten how it did it, even if the muscles are strong enough.  But because I know I did it once I keep trying and the sequence and signals get better/stronger and the miracle becomes normal again.