Phyllis4732

Stroke Survivor - male
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Everything posted by Phyllis4732

  1. Hi "Icy" People sleep a lot when they "need to get away". Do not worry. Yourbody and brain know when it is best for you to sleep. Listen to them. It is wise to be extra careful when you are having a "clumsy day" As for your eye problem, your attitude is right; Dr.s have been wrong. The opthamologist I went to last year was older and could understand but he retired, and I got this much younger Dr. (better looking too- guess my sight isn't so bad) but right away, he said he could help me see better with cataract surgery. Please tell me what good not having cataracts will do for an eye that most likely isn't connected to the brain? He didn't see any MRI's etc. and I was there and knew when my eye trouble started. I thought it was an age related problem, not that my stress was building up to a bleed. So I said no - especially since my "good" eye passed the test for getting a drivers license - so good for another year........(must drive for work) so you see, these Dr.s don't know everything. As for your other half- well...........deal with it as you can. You are you and have always been the same- he is the one with the problem. These things too, have a way of straightening out- one way or another. That too could cause you to sleep. I wish you'd tell me how you could do with 4 hours. I've had to do that to get to work and it is very hard for me. Ended up sleeping at the computer and felt strange when I woke so hustled right to bed and slept 8 hours; needed that. Take care; better days are coming. Phyllis
  2. It is now about 9:15pm and shortly I have to go to sleep so I can get up for work tomorrow. Fortunately, this is the "local week" and I get to sleep an hour later, but I am already missing the days when I did lots of things that I couldn't have done otherwise. I went to Reiki Tuesday night. It was a disappointment though. Each group does things a little differently. They do table Reiki here; I'm used to chair Reiki. It takes about an hour to get there and the same home so it's a long evening. Then Wednesday, I had dinner with a friend who has aphasia. I hadn't seen her in a while. She is doing one on one with a speech therapist and shows some improvement. Thursday, I took my car in to get the door stripping replaced and found out I can get the product at any auto discount for about 2.99. Cheapest I've ever left a dealership ($0). Friday, I was lazy and stayed home and enjoyed doing nothing. But Saturday was the weirdest of all. I told my sister if I ever do it again, to call my ex-neurologist/psychiatrist (he retired) and tell him that I've lost it and need his help. :roflmao: I went to a Wholistic (their spelling, not minr) Fair. It was bad enough that I had overshot the street. They had a small sign, not a large one that hangs over the street on US1. When I go south on the block to the west, there is a large sign. Then I had to go until a street I knew. If I got there I had gone too far. Well, I finally arrived and had to park 3 blocks away. It was crowded and they had a lot of vendors but somehow, it wasn't really anything I wanted. Perhaps it was the thick booklet explaining unconditional love. Simply put, that is what a dog gives, period. No huge book necessary. The CD's didn't appeal, the jewelry wasn't worth the prices being charged, the samples didn't look very appetizing and I decided that I would have been happier if I stayed home and left to come back. Good thing too because we had a huge storm. Never again; it isn't my thing. Today, was another lazy day, dividing my canteloupe plants, going through and straightening some papers and just now taking my clothes from the dryer, making my sandwich for tomorrow and putting it in the fridge. So now, I'm all set to go to sleep. Nite all.
  3. Phyllis4732

    eye dr.

    :Tantrum: :ranting: :nuhuh: get the picture? The solution is easy, yet hard to do. Accept. Yes, we hate it, but your life is much happier if you accept things as they are and "know" they will get better - just not 100% and will take what seems like forever. I have an eye problem and went to an opthomologist last year so that I could get my drivers license renewed; I need it for work. He was an older Dr. who had been around and must have realized that my left eye was shot. He said I had cataracts (thanks to a med I have taken for years- believe that can be a side effect, but was the only one I could take after testing many 'cause I'm so sensitive) but anyway, he said, but don't worry about it now. I did not go back in 6 months as he would have liked, but did in a year since he wrote on report to state that I had to - and then he retired later in the year! Good for him, but left me having to find someone else. So I went to another one in the same practice- a younger Dr. He right away wanted to do surgery for the cataracts. I figured if I am able to pass the driving test for driving with 1 good eye with corrective glasses, why do that if maybe that isn't the problem (and I doubt that it is entirely) So I wear the dumb glasses which make everything look close (maybe it is) but I really wonder because I park about a mile away from gas pumps, back up only about a foot and go back and forth when there is plenty of room etc. It makes it difficult and has me acting like an idiot when I do those things- yes, I get looks. But, in general, you say, I'm not giving up, and I'll live my life the best I can and accept because I can't do anything about it but what I am doing. Think of all the time and energy you expend by getting upset and acting like the first 2 characters above. Try it, you'll see. Phyllis
  4. Hi Donna, Know the stair thing well. There is a rail on bottom 7 steps but only on one side the top 7. I too hope you have a bathroom on the first floor - or a cork. (Sorry for the sick humor) I know security is strange but what is what they did to you and Kristi and Crystal couldn't be near you? I can understand their worry about people in wc because there could be some who would have bombs etc. but what if you could't walk through. That would be terrible. Well, now is the fun part and in no time, it will seem like you've beenn there for years. So much for kitty anti anxiety meds. Smart cat; didn't want to miss a thing. It's times like these that we wish they could talk. Well, I didn't travel and I'm pooped so - I'm closing too. LOL! Phyllis
  5. Phyllis4732

    b006.jpg

    Nice pictures in civilian clothes LOL!
  6. The thought of all that work being done at Harmony Lane sounds tiring but interesting. Good to hear from you since you are one of the long-timers. (See I don't say old ones; that is reserved for Stephen and myself. LOL! Happy you are having companion from Mexico. Too bad your friend can't tell me what to eat that isn't spicy. I'm going to dinner with a stroke friend and it was her time to choose. Should be interesting for me. I've eaten some things at Taco Bell but can't remember what they were called. Being honored to speak at the conference is wonderful. I know you'll do well. Remember to send us any clippings or comments from it. Hope to see you again soon - have a great supply of Pepsi right now so if you need the fridge room for iced tea, it's yours............Isn't that kind of me? BTW, do English people drink their tea iced ever? Phyllis :big_grin:
  7. Yes, fastening neck chains is a problem. That's why I got a chain strong enough to wear 24/7 for my lightening bolt charm. Good for you! I guess I can start considering myself a lefty sort of so thank you for the hope.
  8. Well yesterday was the first day of the "weekly gathering" which is what it is called on the notice on the bulletin board in the library. It is much more detailed than the ad I had put here and which is going in freebie throw-a-way papers. I do want to thank all for their remarks. I was very careful of all words used so none would be misconstrued. I originally thought of the word "social" and obviously, immediately discarded that. Nancy your suggestion of the word "companion" but that also would not fit. This isn't a dating type thing. If that should happen, great but it had to be sterile in every way. So, I had gone to the movie "Miss Potter" earlier at a different library and gathered some extra reading matter to what I already had, because I was expecting to sit alone for 1-3/4 hours. They gave me a small room and said I may need a larger one later, but it was ok since I had put a low number on the form. I should have remembered to bring a sweater as the library like courthouses are always freezing. So, I sat down and read. The notice had gone up that morning because it had to be approved and the person would be there then, and I had only faxed the first notice to the paper called Seniors Today which is picked up in libraries etc. The shock was that my ad was on the board but the one from the "other" original group wasn't. Whether she was having a new one made or it was taken down, I don't know. She had gone to a stroke support meeting at the large hospital in Daytona Beach and maybe she found what she was looking for. My reading proved interesting though. I saw where there are summer aphasia meetings at another hospital in the Memorial chain and maybe she is going to that. Of course, there is nothing like the type I am trying. I've always said that I learned patience at Reiki which served me good when in rehab for this stroke and it will serve me well with this. I can do a lot of reading. LOL! One article had gotten me all excited! It is for a Reiki Circle! I've looked for one not too far fo 4 years - and tonight is the night! (The downer for me is that it is held at a hospice which seems strange, but perhaps the people who visit there could use the energy.) And classes are being given for Reiki 1 in Bunnell. They are priced at 1/2 of what I paid 7 or 8 years ago which was less than other places- so if they give classes perhaps they will also have a circle. Bunnell is where I' m moving- great! OK, week 1 if you haven't already figured it out was nada, but I'm not disappointed because by having the time to read, I found much more as well.
  9. cool! It's getting there. Phyllis
  10. Thank you Bonnie, but this is a news release in free giveaway papers. They just have the same set-up for all. (I'd also like to put it on Bright House, a cable company that lists clubs. if possible, but my sister changed to a dish and I don't know how to contact. She is saving $ but The Dish stinks. She has had to fight them all along and wanted to drop them, but they said she signed a year contact. She did get her programs and I get most of the things, I like, but I'll find a way to get Bright House when I move. She can't get regular TV because of her location (poor reception if at all), maybe though, I will be able to.)
  11. To my friendly guinea pigs........sorry, but that is what I am asking you to be while giving me some advice and suggestions. Those of you who were on chat last night know what this is about. Those who hadn't heard what it is about should get the idea from this new release. I am putting this in a giveaway paper called Seniors and any other that puts free listings of meeting and groups. What effect would reading a notice like this have on you. Any suggestions. I hope it isn't too long for the papers, but I can't really think of any other way to describe it. I have a notice in the library also. To be honest, I'm not expecting many if any. People don't even come to the rehab related stroke support and this is why this is being formed. It would be a sort of companion group, not instead of. OK, here it is. Strokers "R" We A new and different group. By Stroke Survivors for All Stroke Survivors, recent or long time. Non-strokers, even caregivers have no idea how we feel or how we can deal with the new person we have become. Therapists can treat our medical problems but they have no idea how we feel emotionally. The idea of this group is to get together as a group where there is friendship and understanding. Learn how others are coping, share what you have found and enjoy activities together, which maybe old friends can not understand - eating out, going for coffee, to "free" movies, concerts etc. that our area has to offer. Perhaps we are a little slower, perhaps our speech isn't perfect, perhaps we forget a word, here and there. Strokers understand because we have all been there. There is a weekly gathering every Monday from 5pm to 6:45pm at the Ormond Beach library. This is late enough to have rested from therapy, or if you work, late enough to stop by on your way home. Of course, caregivers are welcome also. For further information, contact (personal contact info edited by Donna - MBM)
  12. Sounds great, grab bars and all. Those canna bulbs are really choice and quite expensive in Home Depot. I keep wishing the neighbor next door would throw some in the garbage. Things are supposed to grow better if you get them from the garbage and do not say "thank you" for them. Can't understand that, but we had the most beautiful iris that we got that way. LOL!. Enjoy your "working" stay. Phyllis
  13. How great! Hope you don't have a hard time going back.........but for now, enjoy every minute. It's too bad it is so dar away. A little closer would be better and you could do it more often, but for now, have the time of your life. A renewed you is just what the Dr. would have ordered. It will be great when you and Ray are together too. There's nothing like being apart. Getting back isn't so bad after all and you'll both will be filled with stories to tell each other. Will be looking for your return to chat in.....a few........... Phyllis
  14. Phyllis4732

    4 more days

    Good safe trip. It is the start of a new life for but of you and yes, it will turn out fine for both of you. Will miss you but only for a few days and then you will be back - the new edition. What Asha said is right as well as what you wrote. Leaving it to The higher source is the thing to do. He is going to do what is right so why sweat it. Bye for now. Waiting to hear how everything went and is going. Phyllis
  15. Phyllis4732

    spell check

    Fred, you're lucky your name is"King". My last name is German, In English, we all know that "i" comes before"e". Not so in German or at least my name. It tells me my name is spelled wrong. You should hear me scream at my computer. So to keep my bp down, I don't use spell check. LOL!
  16. Donna, you "guys" are doing great! This is one miserable job especially because you aren't moving "around the corner. Think of it this way.....8 more days and then you'll be in Pittsburg and have all the help you could possibly want. It's great that your family is being a real family and helping by trying to make this as easy as possible. Even food will be waiting and with summer, something cool to drink on arrival is going to be great. This day is almost over and soon it will be 7.
  17. Ann, I'm so sorry you didn't get your time sleeping later. Going back after being up and "working" just isn't the same. I know about places like the VA and HMO's. yes, Dr's are businesses too but the former ones are REALLY businesses that look for the cheapest way. They then try to point out how goood it is for whatever reason. I know that people in HMO's don't get the chance for acute rehabs, simply because they wil not pay the fee. The same is true with the rehabs they use. They apparently do not pay the top salary to the therapists and they in turn go where they can make more. So, when they tell you, they are giving you medicine, you are not gettin the best, although they perhaps would say you needed the top brands and you could pay a co-pay. I had a friend who used to follow her Dr. around if he'd change HMO's and he always saw that she got the top meds. She, in turn gave him a very nice bottle of wine at Christmas........... As Asha said, she gets meds from India. Canada isn't supposed to send meds to the US but people are asked what country they will accept meds from such as GB, Australia, Germany etc. My dog gets her flea preventative and heart worm prevention through Canada and it comes from Australia and New Zealand. Same stuff as from US. It's a shame that we must do things like this. Part D is a disgrace and HMO's and the VA are worse.
  18. Oh yes, I agree. A very pretty girl and yes, a wonderful smile. With that smile how can things go wrong. Have been wondering what is going on. Working on your "problems you found? When does school start? Well, I'm on my way to take a nap. Phyllis
  19. BTW, the author of the book - When Bad Things happen to good people was written by a Rabbi. He had a son who had,,,,,,,I'm not sure of the word but it starts with a "p", I think and it is where shildren age very fast and at 13, they have the illnesses etc. of very old people, even wrinkled skin. His son passed away. I don't remember how he explained it but I guess that is was, he was in a better place. Bubbles kids are now grown, of course, but with illness, you have to provide and I'm sure she did.
  20. The recent news and article about American opera star Beverly Sills death made me again think of "life" in general. I had the same feeling when I first knew about Bubbles as she was called. Life is cruel to everyone; the famous and not so famous- as we are. She had a daughter who was born deaf. Here was a woman who had the voice of an angel and if she sang lullabies to her baby, the child never heard her mother's magnificent voice. I just read in the article, which I hadn't known before, that the daughter has MS and a son born to Beverly is autistic. I'm sure she had seen to their care if something had happened to her. Her husband passed away last year. Another strange thing.....she had been disgnosed just a few weeks before with inoperable lung cancer. She never smoked. The thing that surprised me though is that a singer learns to use their lungs properly. They are certainly exercised and one would think this would strengthen them. Isn't it strange that this was the part to give out. Life? It will always remain a big question that no one can explain.
  21. Phyllis4732

    black cloud

    The bad - sorry these things happened. The good - start planning for next year's 4th when you will be here and able to go into the pool. Eventually, these problems go to someone else. I don't really believe that anyone is ever spared completely.
  22. Phyllis4732

    Cherry Kuchen

    Thank you, Vi. Sounds yummy. :happydance:
  23. Sue, howabout trying velcro or duct tape? LOL! Have missed you and think tonight is the time. Hope it lasts a little later because it is the time for the Orchid Society meeting and I will be there until they throw us out at about 9. Hope I don't miss you or too many others. Phyllis
  24. LOL Asha, It's my time zone too, but at least you're closer. However Orlando may have some appeal and Donna may get here first. Glad alll is working out. Will be nice when the plane touches down in Pittsburg and you know you've arrived.